From Vision to Action: Celebrating 10 Years of Rare Disease Advocacy and Shaping the Next Decade

Friday 11 and Saturday 12 November 2022
Novotel Sydney Brighton Beach and Virtual

Master of Ceremonies: Julian Morrow (radio host, actor, comedian and television producer)

Rare Voices Australia (RVA) invites you to the 2022 National Rare Disease Summit (the Summit). The Summit will mark RVA's 10th anniversary and shape the next decade of advocacy. The Summit brings together key rare disease stakeholders to explore past lessons and create a rare disease roadmap for the next 10 years, focusing on the National Strategic Action Plan for Rare Diseases. 

Summit attendance is by invitation to ensure stakeholder balance. The two-day program will incorporate a mix of plenary sessions, panels, workshops and networking opportunities. 

The Summit is best experienced in person to maximise relationship building, interaction and participation. Virtual attendance will be available but will be limited to optimise the quality of the online experience. You will not be able to participate in any workshops or attend the Gala Event if attending virtually.