Batten Disease Support and Research Association (BDSRA) Australia is excited to announce the 2022 Family Retreat. This year we are focusing on the importance of coming together again and the opportunity to connect or re-connect with other families within our community. Whether you are new to Batten disease, or already a member of our community, BDRSA Australia looks forward to warmly welcoming everyone to this greatly anticipated event.
Stay tuned for more information coming soon.
What's Included
One night's accommodation for immediate family members and up to one carer per affected child
All meals & refreshments for immediate family members and up to one carer (alcohol at own cost)
In-person presentations, guest speakers, group discussions and facilitated workshops
Fun social activities for the whole family to enjoy
Parent/Guardian Saturday night dinner & drinks
Full access to kids program for kids of all ages and capabilities
Use of all the venue facilities including the pool and adjoining property indoor playground
Onsite parking
Friday night accommodation with dinner and Saturday breakfast for WA and NZ attendees only