A Person-centred Approach to Implementing the National Strategic Action Plan for Rare Diseases.

By invitation only: bringing together key stakeholders in the rare disease sector

Rare Voices Australia (RVA) is pleased to invite you to our 2021 Virtual National Rare Disease Summit (the Virtual Summit). The National Strategic Action Plan for Rare Diseases (the Action Plan) was launched by the Minister for Health in February 2020 with bipartisan support. Person-centred is one of the Action Plan's foundation principles and will shape the Virtual Summit. 

Australian radio host, actor, comedian and television producer, Julian Morrow, will host the event as our Master of Ceremonies.

The Virtual Summit will see key stakeholders in the rare disease sector come together to explore what a person-centred approach to implementing the Action Plan looks like in practice.