Parents Program
Our exciting program will include educational presentations, practical workshops and group support sessions with guest speakers and facilitators. Hear from experts about the latest in Batten disease research, clinical trials, care and management. The program sessions will be presented live and in-person. Further details will be announced as we draw closer the event.
Saturday 12 November
| From 11:30am | Check in / registration |
| 12:00 - 1:30pm | Casual lunch |
| 1:30 - 3:45pm | Afternoon Program |
| 3:45 - 4:00pm | Refreshments |
| 4:00 - 5:30pm | Afternoon Program (cont.) |
| 5:30 - 6:00pm | Free time |
| 6:00 - 7:00pm | Family social activity (includes kids dinner) |
| 7:00 - 8:00pm | Parent/Guardian Dinner |
| 8:00pm - Late | Parent/Guardian post dinner drinks |
Sunday 13 November
| 8:00 - 10:00am | Breakfast/checkout |
| 10:00 - 11:00am | Morning Program |
| 11:00 - 11:15am | Refreshments |
| 11:15 - 12:15pm | Family social activity & Lunch |
| 12:15 - 12:30pm | Closing remarks |
| 12:30pm | Weekend close |
NB. Program is subject to minor changes as we continue to finalise the program content